An Online Consent Maturity Model: Moving from Acceptable Use towards Ethical Practice

نویسندگان

  • Vivien M. Rooney
  • Simon N. Foley
چکیده

The particular characteristics associated with qualitative longitudinal research in the disciplines of psychology and social science have prompted the development of informed consent. There are analogies between these characteristics and the collection and analysis of data in online settings. How and why informed consent has developed in qualitative longitudinal research, both theoretically and practically, can provide a useful resource for considering what informed consent means in online settings. Building on this analogy, criteria are proposed that can be used to provide an ethical judgement on consent practices in an online data handling activity, and form the basis for a consent maturity model. It is argued that if we are to learn from from the history of informed consent in qualitative longitudinal research, then we should strive for an Ethics of Virtue approach to informed consent online, the highest level

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

منابع مشابه

Screening the use of informed consent forms prior to procedures involving operative dentistry: ethical aspects

Background. The present study aimed to screen the knowledge and attitudes of dentists toward the use of informed consent forms prior to procedures involving operative dentistry. Methods. A research tool containing questions (questionnaire) regarding the use of informed consent forms was developed. The questionnaire consisted of seven questions structured to screen the current practice in operat...

متن کامل

How experience makes a difference: practitioners’ views on the use of deferred consent in paediatric and neonatal emergency care trials

BACKGROUND In 2008 UK legislation was amended to enable the use of deferred consent for paediatric emergency care (EC) trials in recognition of the practical and ethical difficulties of obtaining prospective consent in an emergency situation. However, ambiguity about how to make deferred consent acceptable to parents, children and practitioners remains. In particular, little is known about prac...

متن کامل

Towards an Ethical Framework for Publishing Twitter Data in Social Research: Taking into Account Users’ Views, Online Context and Algorithmic Estimation

New and emerging forms of data, including posts harvested from social media sites such as Twitter, have become part of the sociologist's data diet. In particular, some researchers see an advantage in the perceived 'public' nature of Twitter posts, representing them in publications without seeking informed consent. While such practice may not be at odds with Twitter's terms of service, we argue ...

متن کامل

Do Emergency Physicians and Medical Students Find It Unethical to ‘Look up’ Their Patients on Facebook or Google?

INTRODUCTION The use of search engines and online social media (OSM) websites by healthcare providers is increasing and may even be used to search for patient information. This raises several ethical issues. The objective of this study is to evaluate the prevalence of OSM and web-searching for patient information and to explore attitudes towards the ethical appropriateness of these practices by...

متن کامل

The use of patients in health care education: the need for ethical justification.

This paper addresses ethical concerns emanating from the practice of using patients for health care education. It shows how some of the ways that patients are used in educational strategies to bridge theory-practice gaps can cause harm to patients and patient-practitioner relationships, thus failing to meet acceptable standards of professional practice. This will continue unless there is increa...

متن کامل

ذخیره در منابع من


  با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

عنوان ژورنال:
  • CoRR

دوره abs/1710.10022  شماره 

صفحات  -

تاریخ انتشار 2017